a his & hers weblog of worlds apart
I recently read this article about albinism in Africa and it has been haunting me ever since.
In genetics, we talk a lot about discrimination. May 2008 was a historic month for the genetics community in the US. After 13 years of congressional debate, the Genetic Insurance Non-discrimination Act (GINA) was finally signed into law. Protection against genetic insurance discrimination is an extremely important issue. However, this seems to pale in comparison to stories about people who are literally being hunted because of their genetic status.
In 2006, researchers at the World Health Organization published a report on the status of albinism in Africa. In addition to several other issues, they found that there is a complete lack of understanding within the community and among individuals affected with albinism about their own condition.
Being born in South Africa and having spent time in Kenya and Uganda, I feel a sense of connection to the African continent. So, here I am, finally with some credentials and a specific knowledge and skill set, wanting to do something. This is an open call for ideas, suggestions and thoughts.
Photo Credit: Rick Guidotti
Take a look at this website: http://www.positiveexposure.org/
Rick Guidotti has done amazing work for people with albinism. He would be a great person for you to talk to about the situation in Africa.
geez luiz. dealing with the threat of getting skin cancer in your teens is enough, nevermind the threat of being murdered for nothing…