Education, but not Genetic Counseling

CB058386

Cause for concern?

I read a lot about direct-to-consumer genetic testing, and there is little that I read these days that catches me by surprise. So, when I read that 23andMe started selling their services in Southern California outpatient health centers, I didn’t really blink an eye. Until I read this:

Those who purchase the service at these facilities will also receive a 30-minute educational session with a PPH nurse, who will answer questions about genetic testing using educational materials developed by 23andMe. Referrals are provided to genetic counselors, but the education session is not genetic counseling.”

I guess I appreciate that 23andMe made the effort to explicitly state that they are not providing genetic counseling services. But it seems to me that they are going to great lengths not to provide genetic counseling. This system implies that the education piece can be done completely separately from the counseling piece.

I see a fundamental difference between not providing genetic counseling to an online customer vs. putting a customer face-to-face with a healthcare provider and deliberately not providing any counseling. More on this difference later. For now, I’d be interested to sit in on one of these educational sessions. Do the nurses have any additional training in genetics? Is there a protocol for identifying those patients who would benefit from a referral to a genetic counselor? Are online customers ever provided an option for a referral to a genetic counselor? Anyone who can provide clarification, it would be greatly appreciated.

Customer Day Nears

Cross-promotion via Take Your Customer To Work Day

So we’re under three weeks away from the big day, and I just wanted to give a couple brief updates:

  • Picture 4The Museum of Life and Science is on board, which really excites me. Museums have the potential to offer such a compelling behind the scenes glimpse, so hopefully we can get some photo/ video coverage of the day. Many thanks to Beck Tench, their Director of Web Experience, for her interest in the project. The NCLMS has a great reputation for their hands-on experience, and their site nicely aligns. Next time your near Durham, NC, be sure to pay a visit. I know I will.
  • Picture 6Jackie Huba of Church of the Customer and the Society for Word of Mouth (SWOM) has been nice enough to feature Take Your Customer To Work Day on SWOM. If you don’t know it, SWOM is a social network that ‘helps people build word of mouth into the DNA of their organizations using social media.’ I think they’re a natural partner, as both our concepts attempt to link on-line values with off-line interaction for better customer engagement. And just on a personal note, it’s awesome to get some support from a long-time customer champion I have much respect for.

As for updates on other participants, I’m waiting on details from a few, and still working to confirm some other promising leads. As always, if you know of an organization that might want to partake - please let us know. Otherwise, stay tuned – the news is going to start coming a little more quickly now as we near May 28th.